​Ten Things I Learned at the Dementia Action Alliance Conference

DAA thanks Marysue Moses, Dimensions Program Coordinator at Ebenezer Memory Care, for allowing us to re-post her July 24, 2017 article. At the end of June, I had the opportunity to experience the first ever North American Dementia Action Alliance Conference in Atlanta. This was an amazing event, the best and most moving dementia conference I have ever been to, and it scrambled my brain in the very best way. The conference organizers included persons with early-stage dementia in their planning. There were many speakers at the conference who also had dementia, who spoke movingly and clearly about horrendous experiences with…

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What Happens When We See Dementia as a Disability?

DAA thanks Kirsten Jacobs, associate director of dementia and wellness at LeadingAge, for allowing us to re-post her July 14, 2017 article, in which she imagines how our attitudes and actions might change if we looked at dementia as a disability, not an illness. Pam Montana and Chris Hannafan recently invited me to view dementia through an intriguing lens. In early June, the two appeared on my television screen during an installment of the PBS “Brief but Spectacular” series, which periodically asks interesting people to describe their passions. Pam and Chris were sincere and insightful as they presented their “Brief but Spectacular” take…

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Re-Imagine Dementia

DAA thanks Vicki Kaufmann of CaregiverFamilies.com for allowing us to re-post the following article from her online blog. July 22, 2017 In his 1971 best-selling solo, “Imagine,” John Lennon encourages his listeners to imagine a world at peace without barriers, borders, or divisions. I attended the Dementia Action Alliance (DAA) Conference held in Atlanta June 25-27. The theme was “Re-Imagine Life with Dementia.” This motto set the tone for the workshops, interactive learning sessions, and special interest groups. DAA Conference Button I was particularly moved by the Monday morning plenary panel discussion. The five panelists are active advocates and either…

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Six Lessons I Learned at the Dementia Action Alliance Conference

With our sincerest appreciation to Juliet for allowing DAA to re-post her June 30th blog. Juliet Holt Klinger June 30, 2017 I have just returned from the first Dementia Action Alliance Conference: Re-Imagine Life with Dementia in Atlanta and I feel strongly compelled to share my experience. Frankly, I can’t think of a better way to wrap up Alzheimer’s and Brain Awareness Month. The Dementia Action Alliance is an organization that was formed to give a voice to those living with dementia and those who partner with them. You can read more about their mission here. The conference was the first of its kind;…

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Did you Know…

For Those Among Us Who Are Journalism-Challenged By Karen Love I recently met Jay Newton-Small for breakfast. Jay is an engaging journalist who has been writing for TIME Magazine and Bloomberg News for over 15 years. Her experience with her father’s dementia led Jay and another journalism colleague to launch a company, MemoryWell, to help other families capture personal stories, pictures, music and videos of loved ones. I asked Jay if she had considered writing an article about people LIVING with dementia from first person perspectives and not the stereotypical approach from others’ perspectives about the impairments and losses. She…

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Recognizing the Importance of Advocating for those with Alzheimer’s and Dementia

From the Congressional Record of September 21, 2016: HON. MICHAEL G. FITZPATRICK of Pennsylvania in the House of Representatives Wednesday, September 21, 2016 Mr. FITZPATRICK. Mr. Speaker, I include in the Record the following letter by Michael Ellenbogen. I am so thankful to be still here. Many of my friends who were living with dementia have died and others are no longer capable of speaking. I am one of the lucky ones. My Alzheimer’s is progressing very slowly. While that is good news it is also bad news. I will be forced to endure the worst part of this disease even…

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PERSPECTIVES ON ADVOCACY:  Strength in Numbers

By Cynthia Janus, M.D., author of THE ALZHEIMER’S CATASTROPHE: The Long Uphill Battle Against Alzheimer’s Disease and Why We Can’t Afford to Lose People who are diagnosed with dementia, and those who love them, embark on a challenging journey as the lives they had previously imagined are changed forever.   I know this because I was on this journey for at least thirteen years with my husband, who had dementia, ultimately diagnosed as Alzheimer’s type. In the case of Alzheimer’s disease, the most common form of dementia, there are more questions than answers as to its exact nature and cause (or…

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