Making a Profound Difference

by Jackie Pinkowitz Chair CCAL – Advancing Person-centered Living As November’s chill fills the air and autumn leaves begin to fall, our hearts and minds naturally turn to thoughts of Thanksgiving, a holiday that invokes coming together with kindness and caring towards one another. The Picker Institute describes their Always Events® as “… aspects of the patient (person) and family experience that should always occur when patients (individuals) interact with health care professionals and the delivery system.” Imagine the profound difference we could make across our country if each of us would always show kindness and caring to those we…

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Rethinking Dementia Care

by Molly Fogel, LCSW Director of Educational and Social Services, Alzheimer’s Foundation of America   More than 5 million individuals in the U.S. are living with dementia. Family members and friends provide an estimated 17.4 billion hours of unpaid care. The average annual cost of care (direct and informal – informal refers to care provided by family and friends) for people aged 70+ in the U.S. in 2010 was between $157-$210 billion.[1] Figures, such as these, are cited in countless policy reports, research studies, and media stories; however, they are more than just numbers. In the face of such an epidemic,…

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Are You a Hero?

by Christopher D. Perna CEO, The Eden Alternative, Inc. Let’s start by closing your eyes and saying to yourself the words “I am a hero” either silently or out loud. Don’t believe it? Say it again…”I am a hero.” Hopefully, you’ve done what I’ve asked and now I’ll tell you why. I heard Dr. Bill Thomas recently define a hero as a person who chooses to make changes and do things differently. He emphasized that these don’t even have to be big changes. They can be small, incremental changes. Does it seem like this makes it too easy to qualify? Well,…

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“You See Me, and Yet, You Don’t Know Me?”

You see me , and yet you don’t know me? You hear me, and yet you ignore me? You talk about me, and yet, don`t talk too me? You laugh at me, yet i am not Funny? You Pity me, and yet know nothing about me? You whisper about me, and yet i can hear you! You dress me, and yet never ask me? You feed me, and yet i dont feel hungry, You wake me, and yet i am so tired, You speak at me, and not to me? (And yet i am still me, i was me before…

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Know Better – Do Better

By: Walter Coffey, MPA, MA, CAE – President/CEO of LeadingAge Georgia, the Georgia Institute on Aging and the Center for Positive Aging. He has both professional and personal experience with individuals living with dementia and serves on the Leadership Team of the DAA Over the last few years, we have been reminded that when we take a moment to be still (often presented as being “in the moment”), we allow our minds to clear as well as let new, better and innovative thoughts come forward.  We all know this is a basic spiritual principle. So, when we actually stop and think…

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Hello, Richard: Your Legacy Lives On

“I want to be remembered for my spirit, my commitment, my determination as one of the first persons to add a voice, a presence to something that was previously just a diagnosis” — Richard Taylor, Accepting the Carter Williams Legacy Award at the Pioneer Network Conference, August 13, 2009 Richard Taylor was famously known by his friends and colleagues as starting conversations, speeches, and emails with “hello”.   Richard passed away at his home from cancer on Saturday, July 25th. Al Power and Kate Swaffer have written beautiful blogs about him in the past couple of days and noted his penchant…

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PURPOSE AND DREAMS

by Robert Bowles, Jr., a retired pharmacist diagnosed with LBD at age 64. “Think back where you would be today if you had not had a purpose in life. The same is true after a diagnosis of LBD (Lewy Body Dementia). Finding your purpose in life is important. As I mentioned for me, it was advocate, educate and sharing my experience strength and hope. Yours might be different. My challenge to you today is to live life to the fullest. There is life after a diagnosis of LBD. Personally, I refuse to let LBD rule me — I WILL rule LBD….

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