Resources Center – Books

Books Written By People Living With Dementia

BOOK TITLE AUTHOR YEAR
Coming Out of the Shadows: Why I am a Dementia Advocate Christine Bryden 2016
Nothing About Us Without Us: 20 Years of Dementia Advocacy Christine Bryden 2015
Before I Forget: How I Survived a Diagnosis of Younger-Onset Dementia Christine Bryden 2015
Who Will I be When I Die? Christine Bryden 2012
Dancing with Dementia: My Story of Living Positively with Dementia Christine Bryden 2005
What the Hell Happened to My Brain?: Living Beyond Dementia Kate Swaffer 2016
Alzheimer’s from the Inside Out Richard Taylor 2015
People with Dementia Speak Out Lucy Whitman (Ed) 2015
Don’t Bury Me…It Ain’t Over Yet Charles Schneider 2006
Losing My Mind: An Intimate Look at Life with Alzheimer’s Thomas DeBaggio 2003
When It Gets Dark: An Enlightened Reflection on Life with Alzheimer’s Thomas DeBaggio 2007
From the Corner Office to Alzheimer’s Michael Ellenbogen 2012
My Journey into Alzheimer’s Disease Robert Davis 1989
Through the Wilderness of Alzheimer’s: A Guide to Two Voices Robert and Anne Simpson 1999
Just Love Me: My Life Turned Upside-Down by Alzheimer’s Jeanne Lee 2003
Living in the Labyrinth: A Personal Journey Through the Maze of Alzheimer’s Diane Friel McGowin 1994
On Pluto: Inside the Mind of Alzheimer’s Greg O’Brien 2014
Dementia & Sensory Challenges – an online booklet at http://www.sdwg.org.uk/wp-content/uploads/2016/sensory-leaflet.pdf Agnes Houston 2016
By Us For Us – series of guides Murray Alzheimer Research and Education Program
“Vascular Dementia – An Inside Perspective” Paulan Gordon 2012

Books Written By Others About Dementia

GENERAL BOOKS ABOUT DEMENTIA – TITLES AUTHOR YEAR
A Curious Kind of Widow: Loving a Man with Advanced Alzheimer’s Disease Ann Davidson 2015
A Dignified Life Virginia Bell, David Troxel 2012
Aging Together Susan and John McFadden 2014
Alzheimer’s: A Beautiful Spirit Celebrated Linn Possell 2012
Contented Dementia Oliver James 2010
Creating Moments of Joy Jolene Brackley 2008
Creative Solutions to Challenging Situations (Workbook and DVD) Teepa Snow
Dancing with Rose: Finding Life in the Land of Alzheimer’s Lauren Kessie 2006
Dementia Beyond Drugs G. Allen Power 2011
Dementia Beyond Disease G. Allen Power 2014
Don’t Rain on My Parade: Living a Full Life with Alzheimer’s and Dementia Richard Fenker 2016
Hiding the Stranger in the Mirror Cameron Camp, PhD 2012
I Still Enjoy a Good Laugh: A Guide for the Journey Through Alzheimer’s Disease Sharon Gregoire 2009
I’m Still Here: A Breakthrough Approach to Understanding Someone Living with Alzheimer’s John Zeisel, PhD 2009
In My World: Short Stories About Familiar People and Places Laura Bowley 2016
Learning to Speak Alzheimer’s Joanne Koenig Coste, Robert Butler 2004
Lewy Body Dementia: Causes, Tests and Treatment Options Adam Wainwright, MA, Erick Stevenson, MD, and Deanna Miller, RN 2012
Living Your Best with Early-Stage Alzheimer’s Lisa Snyder, LICSW 2010
Love, Loss and Laughter: Seeing Alzheimer’s Differently Cathy Greenblat 2012
Loving Someone Who has Dementia Pauline Boss 2011
Mayo Clinic Guide to Alzheimer’s Disease Ronald Peterson, MD, PhD 2009
Measure of the Heart: A Father’s Alzheimer’s, a Daughter’s Return Mary Ellen Geist 2008
Moving a Relative with Memory Loss Laurie White, Beth Spencer 2006
No More Words: A Journal of My Mother, Anne Morrow Lindbergh Reeve Lindbergh 2002
Person-Centred Dementia Care: Making Services Better Dawn Brooker 2007
Remembering the Music, Forgetting the Words: Travels with Mom in the Land of Dementia Kate Whouley 2011
Sexuality and Dementia: Compassionate and Practical Strategies for Dealing with Unexpected or Inappropriate Behaviors Douglas Wornell, MD 2013
Singing Solo JacLynn Herron 2011
Speaking Our Minds: Personal Reflections from Individuals with Alzheimer’s Lisa Snyder, LICSW 2009
Still Alice Lisa Genova 2014
Take Your Oxygen First Leeza Gibbons, James Haysman, and Rosemary Laird, MD 2009
Talking to Alzheimer’s Claudia Strass 2002
Tangles: A Story About Alzheimer’s, My Mother and Me Sarah Leavitt 2012
The Alzheimer’s Action Plan: The Experts’ Guide to the Best Diagnosis and Treatment for Memory Problems P. Murali Doraiswamy, Lisa Gwyther 2008
The Alzheimer’s Catastrophe Cynthia Janus 2016
The Enduring Self in People with Alzheimer’s: Getting to the Heart of Individualized Care Sam Fazio 2008
The Thousand Mile Stare Gary Reiswig 2010
Voices of Alzheimer’s – The Healing Companion: Stories for Courage, Comfort and Strength David Shenk (ed) 2007
What if It’s Not Alzheimer’s: A Caregiver’s Guide to Dementia Lisa and Gary Radin 2014
You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care Tom and Karen Brenner 2012
BOOKS ABOUT CAREGIVING – TITLES AUTHOR YEAR
A Caregiver’s Guide to Lewy Body Dementia Helen Buell Whitworth and Jim Whitworth 2010
A Dignified Life: The Best Friends’ Approach to Alzheimer’s Care – A Guide for Care Partners Virginia Bell, David Troxel 2012
A Pocket Guide for the Alzheimer’s Caregiver Daniel Potts, MD & Ellen Woodward Potts 2011
Alzheimer’s A to Z: Secrets to Successful Caregiving Jytte Lokvig, John Becker 2004
Alzheimer’s Early Stages: First Steps for Family, Friends and Caregivers Dan Kuhn, David A. Bennett 2013
Coach Broyle’s Playbook for Alzheimer’s Caregivers Frank Broyles 2006
Let’s Talk Dementia: A Caregiver’s Guide Carol Howell 2015
Meaningful Connections: Positive Ways to Be Together When a Love One Has Dementia Nancy Kriseman, LCSW. 2017
Seasons of Caring: Meditations for Alzheimer’s & Dementia Caregivers Dr. Daniel C. Potts, Editor-in-Chief 2014
Leader’s Guide for Seasons of Caring: Meditations for Alzheimers & Dementia Caregivers Dr. Richard L. Morgan 2015
Sometimes Ya Gotta Laugh: Caregiving, Laughter, Stress and Alzheimer’s Disease Karen Stobbe 2004
The Comfort of Home: The Complete Guide for Caregivers Maria Meyer & Paula Derr 2007
The Mindful Caregiver: Finding Ease in the Caregiving Journey Nancy Kriseman, LCSW 2014
Visiting Mom – An Unexpected Gift: A Guide for Visiting Elders with Alzheimer’s Sherry Bell, PhD 2000
When Caring Takes Courage: A Compassionate, Interactive Guide for Alzheimer’s and Dementia Caregivers Mara Botonis 2014
SPECIAL TOPIC BOOKS ABOUT DEMENTIA – TITLES AUTHOR YEAR
Connecting in the Land of Dementia: Creative Activities to Explore Together Deborah Shouse 2016
Dementia Arts: Celebrating Creativity in Elder Care Gary Glazner 2014
Do This, Remembering Me: The Spiritual Care of Those with Alzheimer’s and Dementia Colette Bachand-Wood 2016
Spirituality and Personhood in Dementia Albert Jewell, Editor 2011

Books Written About Dementia for Children

BOOK TITLE AUTHOR YEAR
What’s Happening to Grandpa? Maria Shriver 2004
Remember, Grandma? Laura Langston 2004
Remember Me? Te Acuerdas de Me? Sue Glass 2002
A Heart Full of GEMS Linn Possell, Teepa Snow 2015
Always My Grandpa: A Story for Children About Alzheimer’s Disease Linda Scacco 2005
My Little Grandmother Often Forgets Reeve Lindbergh 2007
Still My Grandma Veronique Van Den, Abeele and Claude Dubois 2007
Striped Shirts and Flowered Pants Barbara Schnurbush 2007
The Graduation of Jake Moon Barbara Park 2002
The Last Best Days of Summer Valerie Hobbs 2014
The Memory Box Mary Bahr, David Cunningham 1992
Wordsworth Dances the Waltz Frances Kakugawa 2007

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