A Relationship that Weathered Lewy Body Dementia: Robin Williams and Susan Schneider Williams

By Juliet Holt Klinger October 4, 2016 The DAA thanks our Partner Juliet Holt Klinger and Brookdale for allowing us to re-post this blog. One of the most compelling accounts of sustaining a relationship with a loved one with dementia has just come from Susan Schneider Williams, wife of the late comedian Robin Williams. In her open letter to the American Academy of Neurology in its journal Neurology, Schneider Williams takes the reader – and [...]

2017-05-29T09:23:39-04:00October 9th, 2016|

Finding a balance between risk and an enjoyable life for someone with dementia

By Unforgettable.org The DAA thanks our Partner Unforgettable.org for allowing us to re-post this blog. You want to keep your loved one with dementia safe, but you also want them to enjoy life as much as possible. So how do you get the balance right? Find out what you need to know about Positive Risk Taking Could this be you? You know you can’t wrap them in cotton wool and that the person you’re [...]

2019-10-16T14:18:04-04:00September 22nd, 2016|

See the person, not the disease, with Alzheimer’s caregiving

Angela Lunde By Angela Lunde Cognitive Health and Wellness Director Mayo Clinic Department of Neurology Originally published July 10, 2014 The DAA appreciates Angela allowing us to share her blog because her insights are “timeless” and “so true”: Last time, we spoke about wandering, a label we often attach to a person living with Alzheimer's. It's natural to attach a label to something we don't completely understand or like. Think of other labels [...]

2017-05-29T09:24:26-04:00July 11th, 2016|

You Can Help Someone Live Fully with Dementia

by Jackie Pinkowitz, DAA Co-Leader Every once in a while something special comes along that has the power to stop us in our tracks. Our “Person-Centered Matters” video (see it here) about people living with dementia and those who care about them has such power, beautifully highlighting the positive aspects about helping people live fully with dementia. Many people around our country are doing wonderful things to help others live fully with dementia; they just don’t get front-page [...]

2017-05-29T09:24:35-04:00June 24th, 2016|

Preventing Compassion Fatigue

by Kay Glidden, MS Certified Compassion Fatigue Specialist & Trainer Co-owner, Compassion Resiliency Dr. Naomi Remen said in her book, Kitchen Table Wisdom: “The expectation that we can be immersed in suffering and loss daily and not be touched by it is as unrealistic as expecting to be able to walk through water without getting wet.” Do you ever feel frustrated or impatient taking care of your loved one who is living with dementia? [...]

2017-05-29T09:26:12-04:00November 4th, 2015|

Rethinking Dementia Care

by Molly Fogel, LCSW Director of Educational and Social Services, Alzheimer’s Foundation of America   More than 5 million individuals in the U.S. are living with dementia. Family members and friends provide an estimated 17.4 billion hours of unpaid care. The average annual cost of care (direct and informal – informal refers to care provided by family and friends) for people aged 70+ in the U.S. in 2010 was between $157-$210 billion.[1] Figures, such as [...]

2017-05-29T09:26:28-04:00October 23rd, 2015|

SOMETHING WILL BE DONE! (The caretaker’s affirmation)

By Iona Morris, an American voice actress Hope, Faith that something can be done And, money… Is all we have To add to the action of those in the field journeying Into how the mind works. Oh. And, our love And, our tears of what was lost to a mind Changed. Drifting away so fast We cannot keep up. Can’t take a pill Can’t go to the gym Can’t juice THIS away… “Who took [...]

2017-05-29T09:27:42-04:00May 13th, 2015|