Community Care for People with Dementia: A Handbook For Policymakers

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The handbook sets out to explore what constitutes good community care for
people with dementia and to develop a concise overview of the knowledge-base
that should ground future development and reorganization of community-based
care arrangements for people with dementia.

Dementia Friendly Communities

By: Susan McFadden

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This book offers an overview of the dementia-friendly communities movement, showing the many benefits of this approach. It describes community initiatives from across the globe, such as Dementia Friends, memory cafes, and creative engagement with the arts through organizations like TimeSlips.

Dying Well Improving Palliative and End of Life care for people with dementia

By: Dementia Australia

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Dementia is currently the second leading cause of death in Australia. Despite this, many people, even within the health profession, don’t understand the terminal nature of dementia. Consequently, people living with dementia face barriers in accessing appropriate palliative care services and having their end of life needs met

End-of-Life Decisions

By: Alzheimer’s Association

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When a person in the late stage of Alzheimer’s— a degenerative brain disease — nears the end of life and is no longer able to make his or her own decisions, families must make choices on the person’s behalf.

Making Tough Decisions about End-of-Life Care in Dementia (A 36-Hour Day Book)

By: Anne Kenny, MD

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In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the reader prepare for a family member’s death while managing their own emotional health.

End of Life Care

By: Alzheimer’s Society UK

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This factsheet is for you if you’re caring for a person with dementia. It looks at what happens when the person is nearing the end of life, and when they die. It covers what you can do to support them and other close family or friends, and some of the issues to consider.

Meaningful Engagement of People with Dementia

By: Alzheimer’s Society

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This resource guide has been developed to provide tools, resources and strategies to assist organizations in promoting meaningful engagement with people who have dementia.

The Red Button: Creating Good Choices at the End of Life for People Living with Dementia

By: Richard M Fenker, PhD

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This book is a guide to help people living with dementia (and their families) make good choices about the end of life. The quality of life in the late stages of Alzheimer’s and other dementias can be greatly diminished by many factors.