Alzheimer's and Dementia for Dummies

By: American Geriatrics Society and Health in Aging Foundation

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Alzheimer’s and Dementia for Dummies is a reader-friendly guide written to help loved ones of people recently diagnosed with dementia or Alzheimer’s understand what lies ahead for the person and the family. Readers will learn what they can expect after the diagnosis, tips to remember while providing care for their loved one, and how to help manage the symptoms of the disease.

Alzheimer's from the Inside Out

By: Richard Taylor

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Richard Taylor provides illuminating responses to these and many other questions in this collection of provocative essays. Diagnosed with Alzheimer’s disease at age 61, the former psychologist courageously shares an account of his slow transformation and deterioration and the growing division between his world and the world of others. With poignant clarity, candor, and even occasional humor, more than 80 brief essays address difficult issues faced by those with Alzheimer’s disease including the loss of independence and personhood unwanted personality shifts communication difficulties changes in relationships.

Dementia from the Inside: A Doctor's Personal Journey of Hope

By: Jennifer Bute and Louise Morse

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Jennifer Bute was a general practitioner whose patients included those with dementia. But as she began experiencing symptoms herself, she was diagnosed with early-onset Alzheimer’s after a long and arduous process. Today, Bute sees her diagnosis as a “glorious opportunity” to help others on their own Alzheimer’s journeys. In Dementia from the Inside: A Doctor’s Personal Journey of Hope (2018), she writes about her faith and what it means to enable, rather than to disable, people living with dementia.

Dementia Reimagined: Building a Life of Joy and Dignity from Beginning to End

By: Tia Powell

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Dementia Reimagined is a moving combination of medicine and memoir, peeling back the untold history of dementia. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss–it’s also about the preservation of dignity and hope.

Living Your Best with Early-Stage Alzheimer's: An Essential Guide

By: Lisa Snyder, MSW, LCSW

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Lisa Snyder’s “essential guide” offers advice for people in the early stages of Alzheimer’s. This book provides information on how to cope with Alzheimer’s, manage symptoms, plan for the future, and maintain important relationships.

The Spectrum of Hope: An Optimistic and New Approach to Alzheimer's Disease and Other Dementias

By: Gayatri Devi, MD

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Dr. Gayatri Devi rewrites the story of Alzheimer’s by defining it as a spectrum disorder—like autism, Alzheimer’s is a disease that affects different people differently. She encourages people who are worried about memory impairment to seek a diagnosis, because early treatment will enable doctors and caregivers to manage the disease more effectively through drugs and other therapies. Told through the stories of Dr. Devi’s patients, The Spectrum of Hope humanizes the science, and offers equal parts practical advice and wisdom with skillful ease, along with real hope.

AARP The Other Talk: A Guide to Talking with Your Adult Children about the Rest of Your Life

By: Tim Prosch

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The Other Talk helps you take control of your life so when the time comes, your kids can make decisions based on what you want. This guide provides the practical advice and inspiration you need to have open, honest discussions about subjects that can be difficult to talk about.

Brief for Alzheimer Associations: Access to the United Nations Convention on the Rights of Persons with Disabilities by People Living with dementia

By: Dementia Alliance International and Alzheimer’s Disease International

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This document was created in collaboration with Dementia Alliance International (DAI), the international organization of people living with dementia, in order to enable Alzheimer associations to monitor the protection of the rights of persons with dementia under the United Nations Convention on the Rights of Persons with Disabilities (CRPD).

Dementia Beyond Drugs: Changing the Culture of Care

By: Dr. G Allen Power

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This revised second edition introduces new research, language, and examples to reinforce the core message that antipsychotic medications are not the solution to ease the distress experienced by individuals living with dementia, and presents alternative solutions for providing respectful, individualized support and care.

Don't Rain on My Parade: Living a Full Life with Alzheimer's and Dementia

By: Richard Fenker, PhD, Peggy Nehmen

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Don’t Rain On My Parade addresses a crucial question in an aging world with over 20 million people globally are diagnosed with Alzheimer’s and other types of dementia each year. If you have dementia, how can you plan to “live a full life” as an independent, adult being? A life that is complete and filled will thousands of positive moments.

Ensuring A Human Rights-Based Approach For People Living With Dementia

By: World Health Organization

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People living with dementia and their caregivers have the right to be free from discrimination based on any grounds such as age, disability, gender, race, sexual orientation, religious beliefs, health status and also directly because of their dementia.

Living Well: A Guide for Persons with Mild Cognitive Impairment (MCI) and Early Dementia

By: Alzheimer’s Association

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This workbook can be used on your own or together with a partner. Each chapter includes information about a wellness strategy, its benefits, perspectives of people living with MCI and early dementia, ideas that you can try, and a place for you to build your own living well plan.

Living Well With Dementia

By: Alzheimer’s New Zealand

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This booklet is written for people who have been diagnosed with dementia to give you information and to help you continue to live well.

Principles for Dignified Diagnosis

By: Alzheimer’s Society of Canada

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Principles for a dignified diagnosis is written by people with Alzheimer’s disease about the experience of receiving a diagnosis and how to make it better. Although this document was initially intended for people with Alzheimer’s disease, the principles of a dignified diagnosis are helpful in the diagnosis of all forms of dementia.

The Alzheimer's and Memory Café: How to Start and Succeed with Your Own Café

By: Jytte Lokvig, PhD

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The ultimate guide to starting and succeeding with an Alzheimer’s or memory café, the most innovative project to support people living with dementia and their caregivers. A café meets once or twice a month for a break from the pressure of living with or caring for someone with dementia. It offers everyone a time and place for everyone to leave the disorder and share something positive.

The Apartment - A Guide to Creating a Dementia-Friendly Home

By: Alzheimer’s Foundation of America

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AFA created The Apartment—a model studio residence built in AFA’s New York City headquarters—to showcase ways that practical design and technology can greatly increase the quality of life for someone living with dementia and help family care partners protect their loved ones’ safety.

Travel Well with Dementia: Essential Tips to Enjoy the Journey

By: Jan Dougherty, MS, RN, FAAN

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A diagnosis of dementia or Alzheimer’s disease doesn’t mean you have to give up everything you love. For those who enjoy travel, and want to continue to do so, Travel Well with Dementia: Essential Tips to Enjoy the Journey is a must-read both for patients and their loved ones. Whether visiting family and friends or venturing to a new location for fun, it’s packed with practical tips and strategies that will remove many of the stressors created by travel.

What the hell happened to my brain?

By: Kate Swaffer

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Kate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia.

Words Matter

By: Dementia Action Alliance

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Words Matter is intended to heighten understanding about the impact words can have on the well-being and lived experience of people and families living with dementia.