“Think back where you would be today if you had not had a purpose in life. The same is true after a diagnosis of LBD (Lewy Body Dementia). Finding your purpose in life is important. As I mentioned for me, it was advocate, educate and sharing my experience strength and hope. Yours might be different.
My challenge to you today is to live life to the fullest. There is life after a diagnosis of LBD. Personally, I refuse to let LBD rule me — I WILL rule LBD. Whether with LBD or not, everyone will die one day. DO NOT JUMP TO THE FINAL CHAPTER. Enjoy the good times and thrive on them.
I dream for a cure of dementia. I dream of persons with dementia being better educated about their disease. I dream of better education for caregivers. I dream for better education and understanding about dementia for friends. I dream there will no longer be a stigma attached to dementia. I dream of dementia friendly communities all across the United States much like what is already being doing in the UK. My friend, Harry Urban, shared with me his dream of having memory cafes open 24 hours a day and 7 days a week so everyone would always have someone to talk to. I have adopted that as one of my dreams.”
Excerpt from his Comments for LBDA Inaugural Leg-It-For-Lewy 5K