About Us
We are a non-profit national advocacy and education organization of people living with dementia, care partners, dementia specialists and other advocates. Dementia Action Alliance was incorporated in 1996 in the Commonwealth of Virginia and is recognized by the IRS as a charitable 501(c)(3) organization.
Vision and Mission
We are creating a better society in which individuals and families can live well with dementia without stigma and misperceptions through advocacy, education, empowerment, and support.
”We don’t want to just survive. We want to live and thrive.”
Values
Because...
I’m a person. I have thoughts, emotions, wishes, and needs. When you label me a ‘patient,’ ‘victim,’ or ‘sufferer,’ I feel minimized……
I have a unique background, life history, interests and
capabilities……………………………………
I have holistic, emotional, social, physical, and spiritual dimensions, just as you do………………..…
I’m communicating the best I can in verbal and physical ways because I want and need my choices to be understood………………
My autonomy, choices, self-determination, dignity, and privacy are fundamental to my well-being……………………
Choice has risks, normal in everyone’s life, so I may make mistakes or do something I regret.….
I need to proceed at my own pace in order to feel satisfied, fulfilled, comfortable, and safe………………………
Purpose, meaning, enjoyment, personal growth and relationships are important in my daily life…
Therefore...
Relate to me as you do to any other human being, just like yourself. My personhood may become increasingly hidden, but it’s never lost.
Recognize that my personal goals, measures of success and interests may change over time.
Help me stay connected to what is important to me in my family, home, community, and spirit.
Communicate with me in new ways and learn to interpret my non-verbal behavior, so you can provide the support I need.
I may need and welcome your support, but please do not substitute your decisions for mine.
Respect my decisions, even when they differ from yours, and help me learn from my mistakes.
Place my needs before tasks, and realize that we need to work together.
Promote ways I can achieve my goals, make a difference, and relate to people every day.